NHS DIGITAL GDPR PRIVACY NOTICE
We would like to inform participants that a new General Data Protection Regulation (GDPR) privacy notice regarding long-term follow-up through NHS Digital has been uploaded. You can find it at https://oxhvf.com/art-vascular-study/gdpr-privacy-notice or download it here.
Following a recent study amendment, we would like to post a link to the latest study newsletter that includes information about the study, the study outcomes and an update to the data processing activities. All participants will receive a copy of this newsletter in the post in due course. If you have any further questions or queries please do not hesitate to contact us via the ‘Contact Us/Comments’ box or using the contact information in the newsletter. Newsletter link: Newsletter ART-Vascular 23.08.2017.
We would like to inform our study participants that that since April 2014 the chief investigator of ART-Vascular sub-study has changed (from Prof D Taggart to Prof C Antoniades). The new chief investigator can be contacted either directly by telephone (+441865228340), by mail (West Wing level 6, John Radcliffe Hospital, Oxford University Hospital NHS Foundation Trust, Headley Way OX3 9DU, Oxford), by e-mail: firstname.lastname@example.org or by using the online form found in this website.
In the original study documents and consent form (clause 4) we state that “I give permission for a member of the research team to look at my medical records to get information relevant to the research study. I understand that the information will be kept confidential”. This means that to keep your research records up to date throughout the duration of the study, we will send your NHS number and/or Date of Birth to the Oxford University Hospitals services and/or the NHS Digital who will link hospital admissions information to individual participants within the study. Then the information will be returned to us with data about any health outcomes. NHS Digital will also link your NHS Number and/or Date of Birth to civil registration data from the Office for National Statistics (ONS) which provides information regarding mortality of participants over the time period of this research. All personal information exchanged between NHS Digital is protected and encrypted in line with strict regulations and codes of practice that ensure high security standards.