NHS DIGITAL GDPR PRIVACY NOTICE
We would like to inform participants that an updated General Data Protection Regulation (GDPR) privacy notice regarding long-term follow-up through NHS Digital has been uploaded. You can find it at https://oxhvf.com/bypass-vascular-study/gdpr-privacy-notice or download it here.
Following a recent study amendment, we would like to post a link to the latest study newsletter that includes information about the study, the study outcomes and an update to the data processing activities. All participants will receive a copy of this newsletter in the post in due course. If you have any further questions or queries please do not hesitate to contact us via the ‘Contact Us/Comments’ box or using the contact information in the newsletter. Newsletter link: Newsletter Bypass Vascular Grafts 22.08.2017.
We are pleased to announce that since December 2015 the study chief investigator has changed (from Prof P Leeson to Prof C Antoniades). The new chief investigator can be contacted either directly by telephone (+441865228340) or by mail (West Wing level 6, John Radcliffe Hospital, Oxford University Hospital NHS Foundation Trust, Headley Way OX3 9DU, Oxford) or by using the online form found in this website.
In the original study documents and consent form (clause 3) we state that “I understand that the information gathered will be looked at by responsible individuals in the Department of Cardiovascular Medicine and Cardiothoracic Surgery or regulatory authorities where it is relevant to my taking part in research. I give permission for these individuals to access my records and to store them on a secure database linking my personal details, clinical notes and research findings”. This means that to keep your research records up to date throughout the duration of the study, we will send your NHS number and/or Date of Birth to the Oxford University Hospitals services and/or the NHS Digital who will link hospital admissions information to individual participants within the study. NHS Digital will then return your information to us with data about any health outcomes. NHS Digital will also link your NHS Number and/or Date of Birth to civil registration data from the Office for National Statistics (ONS) which provides information regarding mortality of participants over the time period of this research. All personal information exchanged between NHS Digital is protected and encrypted in line with strict regulations and codes of practice that ensure high security standards.